Thank you!

Last week I spent some fantastic days in Castelldelfels, 25 km, south of Barcelona, Spain. The reason why I was there was the General Annual Meeting of PHA Europe. I was invited as a member of PHA Sweden together with about 50 other members representing 20 countries in Europe (including Russia and Israel).

The meeting was very well arranged with presentations from leading PH-specialists, PH-nurses and the pharmacy industry. But the most important was the meetings with all the fantastic people that participated and who told me their stories about PAH. Many were living with the disease and quite a few had undergone double lung transplant and others had, like me, family members and friends with the disease.

After my return to Sweden I have been filled with lust and energy to work with PHA Sweden and I have decided that I will work about one day a week with the association from now on.

Back in town

Back in town after two months in our cottage. It is always kind of strange to come back to Stockholm after being in the countryside. While we are in the cottage life is simple and without routines, we wake up and if it is nice weather, perhaps we go to the lake or into the forest. Days passes by. This summer was the first with three children and that was kind of interesting; there is always someone who is tired, hungry, in a bad mood, or pulling your leg. Now we're back in our daily life routines; work, child care, dinner, sleep. We are very satisfied with our summer holiday but now it feels good to have these routines.

Marie feels that Elliot have been more tired this summer, but I haven't noticed any differences. But I trust Marie's senses more than mine in this case. This week at the child care the staff have mentioned to us that Elliot has been more tired than usual. Next walking test will be in September.
Next week Elliot will be 5 years old. Every morning he wonders how many days it is left until birthday. Right now he is into Spider man and Spider man things tops his wish list.
This Sunday I look forward to an appointment with the chairman of PAH Europe who will come to Stockholm to attend a Cardiology conference. I will met her as a representative for the Swedish network for PAH. I haven't been working with the Swedish web page (http://www.pah-sverige.se/) during summer but before we went to our summer holiday I did start a Facebook group and now the group have 23 members.

Take care