Tuesday, December 15, 2009

Our 2009

Tonight I have been on a lecture about sourdough (surdeg in Swedish) and it was very interesting and inspiring. My interest in baking has grown this fall and as I have become better I find it more and more difficult to buy bread at the grocery (it's a difference between bread and bread and my bread is 10 times better compared with the bread you will find in an ordinary store, I promise;)).

Time to summarize the year. 2009 have been a year with many ups and downs. The first months was probably the worst in my/our life, we were still in shock after the meeting with the doctors and everything was like a black hole (and I lost most of my hearing during 4 months). In the middle of this we found out that Marie was pregnant again. From Mars, April things have become much better. The fact that both I and Marie have been able to stay home together since then is one of the reasons, another is of course that Elliot's condition have been stable. And then of course we got our baby Ida a sunny day in September.

Since mid November Marie have noticed that Elliot have been more tired (maybe me to, but I'm not convinced) and last week the staff from preschool also said that Elliot have been more tired lately. Bang, and it feels like you are balancing on the edge again. A couple of days ago we went to the hospital to do the last routine check for this year. Elliot did not walk as long as he have walked before, but the other tests did not indicate that his condition have been worse. The Swedish winter that is dark, cold, and long is hard on people with PAH.



Soon it's Christmas and I do hope for a long weekend with no surprises. Last Christmas eve we had to drive to the local hospital near our cottage with Elliot and this I don not want to do this year.