Thursday, April 22, 2010

Diagnosis: life crises

At the latest walking test Elliot managed to walk longer than before, but his saturation and pulse was higher than before. There were no indications from the heart and lung check with ultra sound that his condition had changed. Now days, that feels like positive news. Life really is strange.

Last week we had a meeting with the psychologist that we have met a couple of times since last spring when Elliot condition was worse. Elliot was with us and this time he wasn't really interested in talking about his disease, but still it was great to hear him discuss his life from his point of view with the psychologist. Yesterday me and Marie had a follow up meeting and we were told she couldn't see that Elliot was in a need to meet her right now. But, she said, she had written a diagnosis, and it said: life crises and there she has a point. We (me and Marie) are in a constant mode of life crises, sometimes it's better, sometimes it's worse.

Today I got a letter from the Swedish PAH group, they are asking for help to put up a web site and to contact medical companies for financial support. I will engage, but I haven't decided how yet.
Right now, we are so much looking forward to meet the spring. Yesterday, we had snow again, bah!


Finally, I really apreciate all the comments I get;)