Thursday, September 15, 2011

Thank you!


Last week I spent some fantastic days in Castelldelfels, 25 km, south of Barcelona, Spain. The reason why I was there was the General Annual Meeting of PHA Europe. I was invited as a member of PHA Sweden together with about 50 other members representing 20 countries in Europe (including Russia and Israel).

The meeting was very well arranged with presentations from leading PH-specialists, PH-nurses and the pharmacy industry. But the most important was the meetings with all the fantastic people that participated and who told me their stories about PAH. Many were living with the disease and quite a few had undergone double lung transplant and others had, like me, family members and friends with the disease.

After my return to Sweden I have been filled with lust and energy to work with PHA Sweden and I have decided that I will work about one day a week with the association from now on.

Friday, September 2, 2011

School start

All summer Elliot has been talking about the school start. "I'm very excited about it, but I think it is also a bit scarry", he has been saying. Now he has been at school for two weeks and made new friends and he is very positive about the school in general. Unfortunately he fell from a jungle gym (klätterställning) in the playground at school last week and got a fracture in his collar bone. He is in pain but he adopted the new situation quit well and now he uses his left arm insteed.

Together with the school staff we have been discussing how they can support Elliot when they are going on excursions and they proposed that the school could buy a cart where he can sit when his legs get tired. 

The first week Marie and Elliot told about Elliots disease for the other children in his group (about 50) and that Elliot probably will have special treatment when they go on excursions and that me must stop playing to catch his breath more often than other children.