Today we took both Elliot and Olle to the hospital. First Elliot did the condition test and this time it was positive, his sat before the test was 96 and the pulse 86 and after a 6 minutes’ walk the sat still was 96 and the pulse not higher than 90. This was the third time he did this test and this time he walked 328 meters compared to 250 meters the other times. The heart and lung check with ultra sound did not say anything new; the doctor only mentioned that the right heart chamber not had changed which is positive. The doctor also looked at Olle with ultra sound, this just to make sure that he not has the same symptoms as Elliot. Olle was okay so this was probably the last time Olle had to do this test.
Right know I’m tired but happy, these days at the hospital takes all my energy. Hopefully we don’t have to return to the hospital before August/September. In mid June we will go to our cottage in the Swedish west coast and we will stay there for more than 2 month. It will be luxury to be all together for such a long time.
Hi I found your posting and after reading about your son and his current treatment find it very similar to my 2 year old son Daniel's history with VSD and now PH. My son is currently on Bosentan and Revatio and O2 as much as possible. Do you mind if I ask how high are your son's pressure right now ?
ReplyDeleteHi. It's great to read that Eliot's condition is stable.. You might want to post your message to the general discussion board at Phassociation. There are more activity there, also by PH-parents..
ReplyDeleteBest wishes for you and your family...
Fanny, Elliots pressure was between 70-80 when the latest cat was made in December 2008.
ReplyDelete